ABOUT USGhana Association of Person with Albinism (GAPA) formerly known as Society of Albinos Ghana (SOAG) was established on 2nd February 2003. GAPA is a non-governmental organization that promotes the rights of Persons with Albinism. The objective of the organization is to demystify or break the myths and misconceptions of persons with albinism in Ghana and to sensitize and create awareness about the problems facing them. The vision of GAPA is to adopt holistic approach toward addressing the problem peculiar to persons with albinism in Ghana .
GAPA was established to advocate the mainstreaming of issues of albinism through awareness creation, capacity building of its members and networking with relevant stakeholders. Since its establishment in 2003, GAPA has generated a lot of evidence through research to establish the level of exclusion and discrimination being meted out on persons with albinism.
GAPA is a member of the Ghana Federation of the Disability Organizations, World Albinism Alliance as well as a member of the Disability Movement in Ghana. The association currently have a total number of about 1,500 registered members across the country and is currently operating from its national office in Accra.
Our organisational structure comprises of Board of Trustees, National Executive Council (NEC), National Executives and Head Office Secretariat headed by the Executive Director.
Our Core Values: – Celebrate Diversity, Human Dignity, All Inclusiveness, Equality, Transparency and Accountability.
A just and inclusive society for Persons with Albinism for self-reliance and active participation in all matters in Ghana.
We exist to project the positive image of Persons with Albinism as we work with stakeholders to mainstream albinism issues in all sectors of national development through advocacy and awareness raising and in essence making society a better place for all.
We the board, staff and members of Ghana Association of Persons with Albinism hold the following values to be the foundation of our identity as a community. We pledge ourselves to act, in the totality of our life together, in accordance with these values:
- To create an appreciable level of social awareness on the causes and challenges of albinism.
- To promote the training, education and employment of Persons with Albinism.
- To promote gender equity and human rights of Persons with Albinism including children.
- To seek for quality, specialized, humane, and cost effective healthcare and support aimed at alleviating the peculiar vision and skin problems of Persons with Albinism in Ghana.
- To advocate for the promulgation and adherence to specific legislations that will effectively check the frequent infringements of the fundamental human rights of Persons with Albinism in Ghana.
- To co-operate and collaborate with like-minded Associations and bodies and with the Government of Ghana in pursuit of advancement of issues on Albinism.
The major activities of GAPA include;
- Mass membership mobilization of Persons with Albinism
- Research and advocacy
- Public education and awareness creation on albinism and related issues
- Provision of assistive technical devices and related services relating to the skin and the eye
- Capacity building and empowerment of PWAs
Abdul Adam Wahab
National Youth Wing Coordinator
Hon. Confidence Aku Glawu
National Women’s Wing Coordinator
|Mr. Francis Yakor||Industrial Development Consultant|
|Mr. Max Vardon||Former Executive Secretary,
National Council of Persons with Disabilities (NCPD)
|Hon. Kofi Attor||Former MP, CEO Ghana Investment for Electronic Communications (GIFEC)|
|Ambassador Kottey||Former Ghana Ambassador and a Traditional Ruler|
|Hon. Safo Mensah||Former MP, and a ranking member of Parliamentary select committee on gender and social protection, state enterprise and employment|
|Professor Edmund Delle||A dermatologist and a public figure|
|Mrs. Emma Lillian Bruce -Lyle||Former Chief Director, Board Member – National Council of Persons with Disabilities (NCPD)|
|Mr. Dickson Amexo||A lecturer at GIJ and former Executive Director of GAPA|
|Pastor Herman Dusu||Reverend Minister, MOH Financial Controller|
Ghana Association of Person with Albinism (GAPA) formerly known as Society of Albinos Ghana (SOAG) was established on 2nd February 2003.
GAPA is a non-governmental organization that promotes the rights of Persons with Albinism.